About Us

In HAPCHI, Chilean Pulmonary Hypertension Association, we have been working with an unwavering commitment since our foundation in 2013. We are a non-profit civil association, completely independent, with a nationwide scope. Our mission is clear: to improve the quality of life of individuals affected by pulmonary hypertension (PH), a rare but profoundly challenging disease.

Our History

HAPCHI was born from the initiative of a group of patients, families, and friends who, aware of the severe challenges associated with PH, decided to join forces to transform the reality of those affected by the disease. These challenges include late diagnosis, lack of information, and limited treatment coverage. Since its inception, the directors and collaborators of our association have selflessly dedicated their time and skills, driven by a deep commitment to the community.

Teresa Muller - Presidente Asociación Chilena Hipertensión Pulmonar Hapchi.
Maria Isabel Herrera - Tesorera Asociación Chilena Hipertensión Pulmonar Hapchi.
Texia Lopez - Secretaria y Traductora oficial de Asociación Chilena Hipertensión Pulmonar Hapchi.
Carmen Gonzalez - Quimico Farmacéutico Delegada Académica Asociación Chilena Hipertensión Pulmonar Hapchi.
Lorna Bastias - Delegada Zona sur Asociación Chilena Hipertensión Pulmonar Hapchi.
Paulina Saez - Delegada Zona Norte Asociación Chilena Hipertensión Pulmonar Hapchi.

Our Mission

At HAPCHI, we work to: educate, empower, and advocate for the rights of patients with pulmonary hypertension and their families. We recognize the importance of:

  • Promoting early diagnosis: We launch awareness campaigns to ensure that PH is detected early, improving treatment and management opportunities.
  • Ensuring Proper Treatment: We advocate for access to comprehensive therapies that meet international standards.
  • Promoting Comprehensive Coverage: We strive to ensure that patients have access to the medical and social care they need, without economic or bureaucratic limitations.

Our Values

  • Professionalism: We base all our actions on scientific rigor and interdisciplinary collaboration, working closely with doctors, researchers, and experts in the healthcare field.
  • Empathy:We understand the challenges that patients and their families face, and our mission is to support them every step of the way.
  • Transparency: We act with honesty and responsibility in the management of resources and in our activities.
  • Collaboration: We believe in the power of community, and that's why we work alongside patients, families, professionals, and public and private entities.

What we do

  • Education and Awareness
    We organize informational activities, talks, workshops, and campaigns to increase awareness about pulmonary hypertension. Our goal is to provide tools that allow patients and their families to better understand their condition and make informed decisions.

  • Advocacy
    We promote actions to ensure that patients' rights are respected and defended. This includes engaging with health authorities, insurers, and decision-makers to improve public policies and health coverage.

  • Psychosocial Support
    We offer emotional support and guidance to patients and their families, helping them cope with the physical, emotional, and social challenges that the disease brings.

  • Promotion of Research
    We collaborate with researchers, universities, and medical centers to promote studies that advance the diagnosis, treatment, and management of pulmonary hypertension.

Our Impact

Since its foundation, HAPCHI has positively impacted the lives of hundreds of patients and their families across the country. Our work has contributed to a significant change in the visibility of pulmonary hypertension and the quality of care patients receive.

At HAPCHI, we believe that information is power, and that mutual support is the key to transforming lives. Together, we work toward a future where all patients with pulmonary hypertension have access to dignified, timely, and quality care.

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