{"id":95,"date":"2024-12-12T18:03:16","date_gmt":"2024-12-12T18:03:16","guid":{"rendered":"https:\/\/hapchi.cl\/?page_id=95"},"modified":"2025-04-23T16:29:30","modified_gmt":"2025-04-23T16:29:30","slug":"home","status":"publish","type":"page","link":"https:\/\/hapchi.cl\/en\/","title":{"rendered":"Home"},"content":{"rendered":"
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\"Breathe Hope: United Against Pulmonary Hypertension\"<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\"Providing information, support, and resources for patients, families, and medical professionals.\"<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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  • \"\"<\/li>\n <\/ul>\n <\/div>\n \n <\/div>\n<\/div><\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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    What You Need to Know About Pulmonary Hypertension<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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    Participating in clinical research can not only benefit you directly but also serve as a valuable contribution to future generations of patients. Your involvement can pave the way for new treatments and, ultimately, a cure.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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    Fact 1: Patients Are Crucial to the Success of Research <\/div><\/span>\n\t\t\t\t\t\t\t\n\t\t\t<\/path><\/svg><\/span>\n\t\t\t<\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t
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    Patient collaboration is essential for advancing medical research. Scientists and doctors rely on the participation of individuals like you to obtain valuable insights that cannot be gathered otherwise. No one understands pulmonary hypertension (PH) better than those who live with it every day, and your experience can provide crucial data that make a difference in the development of new treatments. Medical advancements and current treatments are a direct result of patients\u2019 valuable participation in research studies.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t

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    Fact 2: There Are Many Ways to Support Research <\/div><\/span>\n\t\t\t\t\t\t\t\n\t\t\t<\/path><\/svg><\/span>\n\t\t\t<\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t
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    It doesn\u2019t matter if you were recently diagnosed with PH, have been living with it for years, are young or older, or even if you don\u2019t have PH. There are many ways to contribute to medical research. Your participation can make a significant difference in the understanding and treatment of this disease.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t

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    Fact 3: There Are Multiple Ways to Find a Research Study or Clinical Trial That\u2019s Right for You <\/div><\/span>\n\t\t\t\t\t\t\t\n\t\t\t<\/path><\/svg><\/span>\n\t\t\t<\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t
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    If you are interested in participating in a study, there are several ways to find an option that fits your situation:<\/p>

    • Talk to your healthcare team about opportunities to participate in PH-related research.<\/li>
    • ClinicalTrials.gov<\/strong> It is a database provided by the U.S. National Library of Medicine that offers information on clinical studies conducted in the United States and in more than 200 countries.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t
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      Fact 4: Participating in Clinical Research Involves Risks and Benefits <\/div><\/span>\n\t\t\t\t\t\t\t\n\t\t\t<\/path><\/svg><\/span>\n\t\t\t<\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t
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      Participating in clinical studies involves certain risks, such as side effects or adverse reactions to treatments, or even the possibility of not receiving an effective treatment. However, there are also significant benefits, such as taking a more active role in your health, gaining access to a medical team specialized in PH, trying new treatments that are not yet available to the general public, and contributing to scientific progress that could help others.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t

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      Fact 5: Patient Safety Is the Number One Priority <\/div><\/span>\n\t\t\t\t\t\t\t\n\t\t\t<\/path><\/svg><\/span>\n\t\t\t<\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t
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      Patient safety is fundamental in any research study. Strict safety measures are in place to minimize risks, and each study is closely monitored for any adverse effects. If a health risk arises, necessary actions must be taken, and it must be reported immediately. Protecting your well-being is always the top priority in the development of new treatments.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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      Doctors Who Treat Pulmonary Hypertension<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      HAPCHI is committed to guiding patients in finding doctors specialized in treating pulmonary hypertension, providing this service impartially and without endorsing any specific physician.<\/p>

      Pulmonary hypertension is a rare but serious disease, and due to its complexity, many general practitioners have limited training in its management. For this reason, it is highly recommended that patients consult a pulmonary hypertension specialist. These professionals have advanced training and experience in treating this condition, ensuring that you receive the best possible care for your health.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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      \u00bfQu\u00e9 son los Ensayos Cl\u00ednicos?<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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      How to Cope with a Recent Pulmonary Hypertension Diagnosis<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      \u00bfWhat to Expect?<\/strong><\/p>

      Being diagnosed with pulmonary hypertension can be a life-changing experience. Each patient reacts differently to this news. It is normal to feel a range of emotions, such as anger, fear, loneliness, frustration, worry, numbness, or a combination of them all. There is no right or wrong way to react. Allow yourself to feel and process your emotions without judgment, so you can move forward in the adaptation process.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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      Before receiving the diagnosis, most patients were already experiencing difficulty breathing and other symptoms related to pulmonary hypertension. For many, the diagnosis comes after a series of medical visits and tests. While some are fortunate to be diagnosed in the early stages, the majority have had to navigate multiple doctor appointments and complex medical procedures.<\/p>

      Some patients express a sense of relief upon finally receiving a clear diagnosis. As one patient said, \"I was grateful to finally know what was happening to me. Now we knew what we were facing.\" However, it\u2019s important to remember that while a diagnosis may feel like an ending, it also marks a new beginning. The journey of finding a specialist, receiving the right treatment, and making adjustments to daily life is just the start of a new path.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

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      Shock and Denial <\/div><\/span>\n\t\t\t\t\t\t\t\n\t\t\t<\/path><\/svg><\/span>\n\t\t\t<\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t
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      The impact of receiving a pulmonary hypertension diagnosis can be overwhelming. The body's and mind\u2019s natural reactions to stress may help patients navigate the first few days after diagnosis. Some people feel completely overwhelmed and unable to think about anything else, while others describe it as \"walking in a fog.\"\n\nIn these early moments, denial can act as a coping mechanism, giving patients time to handle urgent matters before fully confronting the reality of their condition.<\/p>

      It\u2019s important to remember that while denial can be a helpful part of the adaptation process, prolonging it may delay seeking essential medical care. Starting treatment for pulmonary hypertension as soon as possible is crucial, as it can help improve symptoms, slow disease progression, and support both physical and emotional adjustment.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t

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      Guilt is a common emotion among newly diagnosed patients. Some may feel responsible for becoming ill, for not seeking medical attention sooner, or for not taking better care of themselves. Others feel guilty about the impact their illness has on their loved ones.\n\nWhile these feelings of guilt are understandable, it\u2019s important to remember that you are not responsible for your condition.\n\nAt times, patients go through a phase of \"bargaining,\" where they try to make sense of their diagnosis by wondering what might have been different if they had made other choices in the past.<\/p>

      It is crucial to remember that these emotional reactions are natural, but they should not prevent patients from seeking the necessary treatment.\n\nAs patients come to terms with their condition, many find that understanding their diagnosis gives them a sense of control, allowing them to move forward with greater determination.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t

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      Throughout the adaptation process, experiencing deep sadness is common. Many patients feel fear about their future and the well-being of their loved ones, and the idea of living with a chronic illness can be overwhelming.\n\nSome may even go through a period of major depression, characterized by feelings of hopelessness, isolation, and anxiety.<\/p>

      While these feelings are normal, it\u2019s important to be aware of the signs of clinical depression. If difficult emotions begin to interfere with daily activities such as sleeping, eating, or socializing, seeking support from a therapist or mental health professional can be beneficial.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t

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      Acceptance <\/div><\/span>\n\t\t\t\t\t\t\t\n\t\t\t<\/path><\/svg><\/span>\n\t\t\t<\/path><\/svg><\/span>\n\t\t<\/span>\n\n\t\t\t\t\t\t<\/summary>\n\t\t\t\t
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      Over time, many patients experience a decrease in the intense emotions that arise after diagnosis. As they begin treatment and their physical symptoms improve, many find that the emotional \"fog\" starts to lift.\n\nAcceptance does not mean that everything will immediately return to normal or that life will be exactly as it was before. However, with time, many patients find ways to adapt to their new reality.<\/p>

      Accepting pulmonary hypertension as part of your life does not mean giving up; rather, it means learning to live with the condition and finding a new way to enjoy life. It is a process that takes time, and while it can be challenging, many patients discover ways to live with purpose and joy again.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t\t

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      The adaptation process is unique for each patient, but over time, most people with pulmonary hypertension find ways to move forward while taking care of both their physical and emotional health.\n\nMedical treatment is just one part of the healing process. True healing also involves nurturing emotional, mental, and spiritual well-being.<\/p>

      Some helpful coping strategies for newly diagnosed patients include:<\/p>

      • Practicing self-compassion:<\/strong> Self-blame can lead to anxiety and depression, while self-compassion is linked to greater happiness and optimism. Remind yourself with affirmations such as: \"I allow myself to be kind to myself in this moment.\"<\/li>
      • Accepting the present moment:<\/strong> Focusing on accepting one moment at a time can make the changes that come with the diagnosis more manageable.<\/li>
      • Turning Challenges into Opportunities:<\/strong> Although the diagnosis may bring pain, it can also be an opportunity for personal growth and for reconnecting with loved ones.<\/li>
      • Distinguishing Pain from Suffering:<\/strong> Physical pain is a part of life, especially with chronic illnesses. Accepting it without allowing it to turn into constant suffering can help better manage symptoms and improve overall well-being.<\/li>
      • Seeking Professional Help:<\/strong> Talking to a therapist when difficult emotions interfere with daily life can be crucial for emotional well-being.<\/li>
      • Turning to Spirituality:<\/strong> Whether through religion, meditation, or practices like yoga, spirituality can provide a space of peace and acceptance to help cope with the diagnosis.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/details>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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        Remember, life is still what you choose to make of it. By recognizing your emotional, physical, and spiritual needs, you can find a path toward a fulfilling life, despite pulmonary hypertension.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"

        “Respira esperanza: unidos contra la hipertensi\u00f3n pulmonar” “Brindando informaci\u00f3n, apoyo y recursos para pacientes, familiares y profesionales m\u00e9dicos.” Lo que necesita saber sobre la hipertensi\u00f3n pulmonar Participar en investigaciones cl\u00ednicas no solo puede beneficiarlo directamente, sino que tambi\u00e9n puede ser una contribuci\u00f3n valiosa para futuras generaciones de pacientes. Su participaci\u00f3n puede allanar el camino hacia […]<\/p>","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"elementor_header_footer","meta":{"give_campaign_id":0,"footnotes":""},"class_list":["post-95","page","type-page","status-publish","hentry"],"campaignId":"","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/hapchi.cl\/en\/wp-json\/wp\/v2\/pages\/95","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/hapchi.cl\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/hapchi.cl\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/hapchi.cl\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/hapchi.cl\/en\/wp-json\/wp\/v2\/comments?post=95"}],"version-history":[{"count":15,"href":"https:\/\/hapchi.cl\/en\/wp-json\/wp\/v2\/pages\/95\/revisions"}],"predecessor-version":[{"id":565,"href":"https:\/\/hapchi.cl\/en\/wp-json\/wp\/v2\/pages\/95\/revisions\/565"}],"wp:attachment":[{"href":"https:\/\/hapchi.cl\/en\/wp-json\/wp\/v2\/media?parent=95"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}